Kye's Little Star
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Kye was born on a snowy night of April 14, 2001. A beautiful and perfect baby he was. We named him Kye, which in Japanese means "ocean" (his mom Chi is Japanese and his dad Simon English, and we live in Canada). His courageous journey with Krabbe Disease ended on a starry morning of December 9, 2002 at age 19 months. When he passed away in our arms, his face was so proud and happy. A little boy at last, ready for and excited about his new journey. |
 Two days old |
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Thanks to the many people around the world who have been with all of us throughout Kye's extraordinary life and who have made it so much more a life worth living. Your comfort and assistance have enabled us to give Kye the best life possible and have helped all of us to live lives filled with happiness and reward even in the face of such hardships. This has been your tragedy, too, but we know being a part of Kye's life was your joy as well.
Our dearest Kye, you are the one we need to thank you the most. You are the best thing that has ever happened to us, and our lives are forever richer because we had you. You showed us a reason to fight and a reason to live with the power and intense fragility of your being. |
 Big smile all around |
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You have touched the lives of so many friends, family, people we have never met, nor even heard of, people all across the world, who have never even looked upon your angelic face. All these people have held you in their hearts and thoughts, have hoped for you, have prayed for you, have cried for you, have been inspired, have been changed, have felt the extraordinary power of your will to live. In your so sadly short and burdened life, you have truly made this world a better place.
We have watched with countless tears your struggle, we have felt your pain, we have tried to make sense of something that defies it. Yet more than this we have felt your strength, and been touched by the spell of your incredible spirit. We have seen the life burn in your eyes and have seen our own lives in it. We have lived each and every day in the joy and beauty that you bring us. Kye, you have in every way enclosed us. We are just so happy that you were given to us and that we had the opportunity to give you the love and care you needed and deserved. |
 With my favorite sis |
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Kye, we all miss you terribly, and it is just so unbearable not being able to hold you in our arms and feel your warmth. But you live on with us on every level of decisions, thoughts, and actions because all of those are based on what we went through together with you. Don't worry little Kye, you will have your birthday, Christmas, and all the special occasions every year in our hearts. Ah, yes, you will have presents, too.
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Then there's our beautiful daughter, Hana. Kye was so lucky to have the best big sister in the world. You were always so kind and helpful to your little brother, helping him eat, helping mummy with his medicine, washing him in the bath with daddy, listening to his heartbeat with your very own stethoscope, lying with him and stroking his hair, singing songs to help him sleep, kissing him every day of his life, and filling his heart with your laughter. You made Kye so happy. And he loved you so so much. We don't honestly think we could all have made it without you making us smile and always showing us the bright side of the life.
Hana and Kye, we love you always. Mummy and Daddy (Chigusa and Simon) |
 One Happy Family |
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ALL THAT YOU LEAVE US
a poem by Simon Gair This early dawn As the day's first breath of light So softly brushed aside the veil Of our final loving, longest night We watched the sky grow pale with blue And saw its last remaining star Through Hana's bedroom window Shining for us from so far Alone up there in silence This is you, Kye This is your star Where you will live now never ending Burning with the flame of love That you have left us in our hearts To light our lives as we live on Always with you and your smile Even as we feel the snow So gently everywhere descending Our precious Kye You leave us now You leave us with so much You leave the imprint in our hands Of your most fragile touch You leave the hope you grew in us With every fragrant breath You leave the love we shared with you And all who knew your story You leave the brightness in your eyes Through which we knew your smile You leave the laughter in our home From all the joy you brought us You leave the tears that bathe our souls An ocean that unites us You leave this world a better place That you gave your short life to us You leave your star forevermore From which you look down on us And leave a place in all our hearts Where you stay forever with us Then leave us now Fly to your star And stay forever with us |
 Kye Gair 2001-2002 |
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 Kye's Family by Hana |
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